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Mum begs pharmaceutical company to give her son, 16, life-saving wonderdrug

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Joe Barnes' mum Lorraine, from Nottinghamshire, is desperate for the drug company Vertex to grant her dying son Trikafta on compassionate grounds - as he cannot currently receive it on the NHS

For Joe Barnes’ mum, one word means everything. Trikafta. The wonder drug Lorraine believes could save her son’s life.

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should there be a medication charity for expensive drugs and rare illnesses

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