Selling Our Genes: UCD agreement with for-profit DNA collection company 'restrictive'

A RESEARCH COLLABORATION agreement with private company, Genuity Science, is “restrictive”, according to an expert in the area familiar with such agreements.

A spokesperson for UCD said that “many countries have embraced the power and promise of genomics by establishing national policies on public genome initiatives”. They continued: The agreement states that the institution, investigator and research team shall “not use the bio-samples, the participant data collection forms, the GMI databases or the research results for any purpose other than as specified and agreed under this agreement”.

“The assumption underpinning the model agreements is that the Collaborator will have greater rights to exploit the results of the research project where it has made a greater contribution to the project,” according to the accompanying decision guide. Where a collaborator wants to own the IP rights, the IPO states that the return to the Institution should be greater than if these rights were retained.No “exclusivity period” is defined in the agreement.

It also states that the university, unless otherwise agreed, will not get access to the GMI genomic database until 50 percent of the entire participant recruitment target for the national GMI research study into the relevant disease in Ireland is complete. The agreement ensures in particular that these collaborations observe best practice in their handling of patient consent, data protection and intellectual property.

Related Reads 04.10.20 Selling Our Genes: Government inaction allowing private sector to take control of our DNA 04.10.20 Selling Our Genes: Government needs to keep ‘our national identity’ in public ownershipThis agreement is signed by UCD and GMI but it specifies that “GMI wishes to engage with the University to perform, in conjunction with its affiliated hospitals, research activities for various studies into the genomic basis of certain complex diseases in Ireland”.

noteworthy_ie The only comparison is to Britain. There’s are dozens more countries to compare to. Lazy journalism

noteworthy_ie The Chinese firm collecting Irish people's DNA without consent Simon Harris is pally with?

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