I Have a Rare and Chronic Skin Condition. Does the Beauty Industry Care?

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'The burden of healing shouldn’t be totally on my shoulders though. The beauty industry should adapt too.' Beauty writer kaleighfaz reflects on her experience living with Netherton syndrome.

.” It affects fewer than 200,000 people nationwide, and the anomalous malady manifests itself through red scaly rashes, scalp and hair abnormalities that cause acute breakage and extreme shedding, and a weakened skin barrier that increases the risk for infections.

This content is imported from Instagram. You may be able to find the same content in another format, or you may be able to find more information, at their web site.Much to my surprise, the essay I wrote landed on the site’s homepage where it was seen by legions—and not long after that, my inbox was flooded with messages from folks all over the world who had analogous experiences to my own.

I’ve lost count of how many allergic reactions I’ve endured at the expense of products that claim to cater to compromised skin.

 

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