Your account is not active. We have sent an email to the address you provided with an activation link. Check your inbox, and click on the link to activate your account.Eli and Easton Reed, diagnosed with spinal muscular atrophy after their birth on March 31, 2024, currently face a dire prognosis after the family’s insurance company denied, SMA refers to a group of hereditary diseases that can damage and kill specialized nerve cells in the brain and spinal cord .
“Time is of the essence with this … since they don’t have symptoms as of right now,” the twins’ mother, Amanda Reed, told He added: Type II begins to affect children between six–18 months old. Children can sit independently but cannot walk.’ medical insurance chose to cut out covering gene therapy, one of the recognized treatments for SMA, as of April 1, 2024, leaving Amanda and Austin incapable of paying for the life-saving treatments, Kecia wrote.
On Tuesday , Kecia announced that the fundraiser had been stopped “with the great hope, the boys will be able to receive the medication soon.”
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