A woman with a rare genetic disease is taking life one day at a time – beginning a career in the makeup industry this week.Ms Scanlon explained she is essentially missing the layer of skin that holds all the other layers of skin together.“So, my fingers and toes have fused fully together,” she told“I could be in better condition than some days, but mostly I take painkillers as soon as my mother wakes up, which would be about 6.30am.
Now, she is a talented makeup and special effects artist – and she revealed she started her first job at Sculpted by Amy last Tuesday.“It's not a common thing to see people with physical disabilities in the makeup industry.”Ms Scanlon specialises in traditional makeup looks – but is also skilled in cosmetics.The makeup artist said she is “very lucky” to have the support of her family throughout her career and illness.
She has nurses who specialise in butterfly skin – although her family has had to fight for “every single hour of care that I have gotten”.