Even for those who have already taken genetic tests, robust regulations could prevent their data from being exploited in unforeseeable ways, including those enabled by new technology. — Photo by Tima Miroshnichenko: https://www.pexels.com/photo/a-person-in-white-robe-using-a-microscope-9574415/, a company offering popular at-home DNA testing, has upset the industry.
The implications of genetic data breaches are staggering: This information can reveal sensitive information about a person’s health and other characteristics. In the wrong hands, it carries profound risks. For example, it can lead to discrimination in schools, housing and disability insurance , or to the creation of biological weapons that use DNA to kill a targeted individual. Unlike a compromised password or credit card number, genetic information cannot be changed.
Through a merger, acquisition, sale of assets or bankruptcy, companies could monetise the treasure trove of DNA they have collected. The privacy policies ofand GEDmatch both make clear that if the companies are sold, a user’s personal information can be transferred as part of that transaction.adds another layer of concern. Facebook’s business model revolves around sharing information with many third parties.